Our #womancrushwednesday this week is model Maya Spencer-Berkeley (@mbajsb). Maya suffers from the rare condition Epidermolysis Bullosa (EB) which affects 5,000 people in the UK and 500,000 people worldwide. There are three main types; Simplex, Dystrophic and Junctional. Maya suffers from Recessive Dystrophic EB, despite this, her positive attitude and outlook on life inspire her to raise awareness of the condition through modelling.
She is a true figure of inspiration and empowerment, we hope to help her to spread her message of body positivity and confidence. Check out some of our favourite posts from her below!
featuring in @id_italy and @vogueitalia
Epidermolysis Bullosa (EB) is a group of rare genetic skin conditions which cause the skin to blister and tear at the slightest touch. There are three main types; Simplex, Dystrophic and Junctional, that affect around 5,000 people in the UK and 500,000 people worldwide. Far from merely a genetic condition, for @mbajsb, Recessive Dystrophic EB is a reality of everyday life. Head over to BRICKS online to read her personal essay and learn more about the condition. #BRICKSvoices @rcafoster
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Maya wrote a really important and educational piece for Bricks Magazine, highlighting and raising awareness of her condition. The amazing photos were taken by Rosie Foster (@rcafoster). Check out the article here.
she’s an actual work of art!
One of her photos taken by the amazing Rosie Foster (@rcafoster) is up for sale at Doomed Gallery in Dalston! If you live in London and have some time, make sure you check it out!
When Maya isn’t modelling, you can find her selfies on her Instagram account. We think she looks beautiful in every photo! Maya’s confidence inspires us to be more body positive, we love everything she’s doing to work hard and raise awareness of her condition.
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Another shot from @sophiemayanne’s #behindthescars series. It’s been a while since I’ve done a post on my skin but it’s still causing me severe lack of sleep due to itching and continuous pain throughout the day. I am attending the Debra members weekend in May and I’m looking forward to finally meeting others with EB. And I’ve been asked to do an inspirational speech on the day (!!!!) which is just a little mad I am NERVOUS. I have been dabbling with the idea of doing some blogposts to give the people who are interested, into a better understanding of what day to day life is like with EB. Pls lemme know if that’s something any of u are interested in? ✨✨
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Maya was photographed by photographer Sophie Mayanne (@sophiemayanne)for her series ‘Behind the Scars’. This is an amazing project that promotes body positivity through beautiful photography. Check out the project here.
If you want to read some more information about Maya’s condition, check out the UK charity Debra.